Special Gifts

Before Sofia I had practically zero knowledge about Down Syndrome. I have since read up and exchanged messages with families who have a family member with Down Syndrome.

I have learned of accomplished people with Down Syndrome such as Frankie Scarfone, a karate hall of famer; Deanna Sipaco, a visual artist who has exhibited her works here and abroad, even gifting Japan’s Princess Masako with one of her paintings; and Clarissa Tiongson, who produces paintings in collaboration with her mom. Plug: Clarissa’s paintings are for sale. Clarissa’s mom, Malu, gives seminars and has written a book about raising a child with Down Syndrome. Gotta add that to my reading list.

I hope this little post of mine enlightens at least a few other people too.

Sofia update: mostly yellow poop today, just a teeny bit of blood early morning. Go, go, yellow!

Nhatz ran into the priest who baptized Sofia, Fr. Silva. He visited the NICU today and prayed over and blessed her.

 

Flying Blessing

After we say our family bedtime prayer we say virtual good nights and send flying kisses to Sofia. 3yo Tyler then pretends to drive our kisses to the hospital – I guess he thinks it needs more direction than just being arbitrarily blown to the window. Yoachim surprised us tonight by making a sign of the cross and then blowing it to Sofia – he said it was a flying blessing.

Today we finally got results on one of Sofia’s cultures as to what bacteria is causing the infection. I can’t memorize the long unfamiliar name. At least now we can be more specific as to what antibiotic should be given.